>> Interesting year but not one I'd recommend.
>>
>> A bit like your journey, Z, from "I hate sending poo in the post" to
>> "My ileostomy reversal has been cancelled twice"
>>
>> Not a big fan of this being a patient malarkey (vicariously in my case I
>> guess)...
Its the mental stress thats the problem, it's a real roller coaster, Bad news, Good news, things work well, things go badly, albeit interspersed with periods of stability.
Having an ileostomy is certainly not a lifestyle choice I would recommend, and its had its moments, but at the end of the day, its a disability that has not actually stopped me mostly doing and achieving stuff I want or need to do. The worse thing is that for the last 5 months its been medically not necessary or required. At that point it becomes a thing of resentment.
Generally speaking my trust has been pretty good with dealing with my issue, and I am aware that now my medical priority is not the highest thing on the planet, but at the end of the day a patient has to take some responsibility, control of care, and I am not prepared to meekly roll over and be a victim of someone else's poor planning, poor management, and entrenched rules.
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